Saturday, October 16, 2010

Cuts to The Movement Lab would hurt childrens walking abilities

Funding Needed for Gait Analysis (Movement Lab at Mcmaster Children’s Hospital facing funding cuts)

Our nine-year old daughter looks like other young girl her age. Her walking abilities are so good right now a lot of people don’t even realize she was born with cerebral palsy. Cassie can run playfully at recess with the other children, walk to the park or walk her horse around the barn at her therapeutic riding club. Our daughter frequently requires an assessment of her gait or moving abilities. Gait assessments have been done before and after each procedure that Cassie has trailed. Every parents dream for their disabled child is to have them walk, thus promoting independence, accessibility and living a productive life.
The efforts to improve our daughters walking abilities; have been tireless for us as parents and successful thanks to a large team of health care specialists at Mcmaster Children’s hospital. Born with a brain injury our daughter got her first pair of leg braces by six months of age. For the first three years of her young life Cassie scooted around on her bottom, using one hand and a foot to propel herself forward, she never crawled and had extreme difficulty pulling her self up or balancing. So began the exhausting journey to rehabilitate our daughter.
The Mcmaster team consisted of physiotherapists, occupational therapists at Chedoke Developmental Rehabilitation Program, a developmental pediatrician, an orthopedic specialist, a physiatrist, an extremely talented orthotist and lastly two average parents, hard working middle class, with dreams for their daughter that she will walk as best she can. The last nine years of treatments have consisted of extensive physiotherapy, conductive education, gait training on a tread mill, new braces made every 10-12 months for nine years, serial casting procedures, botox treatments and repeated gait analysis done through Mcmasters Movement Lab. Many of the treatments remain uncovered by OHIP, causing financial hardship for parents, extended benefit struggles and fund raising efforts. The gait analysis done in the movement lab is an OHIP covered desperately needed service and this article will outline why it is so valuable.
The Movement lab is an essential service needed to improve children’s walking abilities. Located at Mcmasters Innovation Park this lab examines closely the gait of children and adults with walking problems. A movement assessment allows doctors, therapists and orthotists to look closely at how our daughter’s muscles and joint’s work when she is moving. This information helps her team make decisions about exercises, braces and surgery. It also shows the team how movement changes over time due to her growth or treatments she has undergone. The full assessment includes a collection of EMG and/or Kinematic and Kinetic info and a video. The test takes only about one and a half hours for the patient however the analysis takes many hours and is essential and useful when examining the complex walking patterns of children.
The use of the Gail Analysis guided our daughter’s orthopedic specialist decision to perform a much-needed orthopedic surgery on her left foot. Six months later our daughter walks without the aide of a wheelchair, walker or even a cane. Our nine- year old daughter is begging her dad to sign up for soccer with her best friends in Ancaster. The tireless hours invested and the specialized team approach has yielded wonderful results. The possibilities for our child are enormous. There are still promising improvements in gait analysis technology on the horizon. Our daughter needs this essential Movement lab until she reaches full height. New procedures are still being developed and planned for children with cerebral palsy or other forms of movement disorders. The Proper use of Gait analysis yields better results for patients. We are still using the Gait analysis for indications for various types of orthotics for our child. We are pursuing a new sport orthotic for our daughter and you can bet Cassie will play soccer in the near future thanks to the medical professionals at Mcmaster Children’s hospital and the Much needed Movement Laboratory!!



Cassie Fruck age 9, at the motion lab at Mcmaster Children’s Hospital prior to having orthopedic surgery. I appeal to the LHIN, local government, health care administration do not cut funding for this essential service, continue to fund the Movement lab at Mcmaster Children’s hospital please!!

Sunday, September 19, 2010

Reflecting on turning 40!


My family and friends must have guessed I’d write something about turning 40. To me it is a big deal. I was born in 1970 and now its 2010 already! I really can’t believe I am at middle age. It is difficult to think I may be half way through my life already. I don’t feel 40. At the same time I love my life and am happy with where things are at right now.

After graduating from nursing school in 1993 I met Chris, The perfect man for me. Chris is tall, dark and handsome. So calm, I’m so hyper. So quiet, I’m so talkative. He thinks through things carefully, I rush ahead. We compliment each other. He slows me down and always stays calm. I speed him up, motivate him and keep things exciting! Two years ago he had a stroke. We were not paying enough attention to each other, working too hard, fighting too much. Out of bad, comes good. Now we make more time for each other, try to have our meetings like Jamie suggested. We took our first vacation together since our girls were born. Cruised the Caribbean with Bill, Triena and friends. Chris is healthy again. Next to health, Chris is the most important thing in my life. Thanks for having this 40th birthday party for me Chris. Thanks for cleaning up the house and yard, thanks for my table and chairs a nice meeting place to talk and thanks for cooking 120 cabbage rolls! I love you with all-my heart husband.

In 1998 Julia was born the second biggest day in my life. She was so perfect, a Gerber baby. Julia won the Caledonia Fair baby contest. Colleen and Jamie thought of her name. It was the first name Chris did not say no too so I jumped at it! Julia is a perfect daughter smart, beautiful and so well liked. I really enjoy you Julia, I love being your mother. You are growing up fast.

In 2001 our second angel girl Cassandra was born. Named by Chris this time. Cassie met some complications and this was a difficult time for Chris and I. We could not bring you home for many months. The doctors told us about your brain injury and we were worried. Chris and I relied on our faith. Difficult times in life enable you to clearly see who your good friends are. Colleen and Jamie, Steve and Sue Case, Colleen and John, Aunt Helen and Dave. My family and Tex’s family all stepped up to the plate. Phone calls, visits to the hospital, food, babysitting Julia, words of encouragement it all helped. Chris and I accepted what God had in store. Cassie is so chatty like me. She makes friends with everyone. She pushes herself. She tries hard. She hardly even looks “like a girl with a disability”. She makes us so proud. She teaches us all not to feel sorry for ourselves. Cassie has the world at her doorstep. I am blessed to have my two beautiful girls. Chris and I work as a team and parenting is our favorite job.

I can’t let turning 40 go by without thanking my mom, my best friend. Mom and Joe will do anything for us. Nothing is ever too much to ask. They are the best parents in the world. They raised me well, they are the best grandparents and we will always be grateful for what they do for us. Thanks mom, your baby girl is turning 40.

I am a very blessed person. I am lucky enough to have the same girlfriends since public school. Laura, Chrissy, Colleen, Susan and Tracy. Over 30 years of true friendship with these gals. Girl friends are important to me. They remind me I can still look hot and that 40 is really the new 30! I will always make time for my girlfriends. It never matters how long it has been since we last visited. I am glad to see them when I can. I love them and am blessed to have them.

New friends have been added since living in Ancaster. Graema, Susi, Giselle, Deb, Janet, Andrea. They make Ancaster home. They are involved in my everyday life. Thanks for being a part of my birthday party friends.

Lastly, I am so blessed to have a very big supportive family. I have brothers and sisters, the Fruck family, the Wazny family, gramps, aunts, uncles and cousins. We try to get together often. We teach our children how important family is. I wanted to be sure to include you all in this milestone of me turning 40. I am always loved and supported in my family. I am one lucky girl.

Thank you all for the birthday wishes, Have fun at my party. Laugh, Eat and Love I am really going to enjoy this day. I hope I have another good 40 years!!

Love Kate

Saturday, August 7, 2010

A Trip Back to Ability Camp

We heard some of the boys from Cassies class were back at Ability camp so we took off back to Picton Ontario to see some friends. Left is Chris working with Dre on the wall in the classroom. Cassie loved going back to camp. The bond remains strong with her friends she worked hard with at camp.

Cassie, Dre, Julia and Jessie in the halls or Ability camp

Cassie and her good friend Dre from Michigan. They stayed with us on their way to camp and on their last night before heading home.





Dre, Samuel, Jessie and Cassie all alittle bit older. I hope these friends can stay in touch. It is special for Cassie to have other friends with cerebral palsy. So great to see you boys again!!



Saturday, April 17, 2010

A Trip to the Fracture clinic and a new Purple Cast

We went to Mcmaster Fracture clinic and they removed Cassie's Cast. The foot has two pins and three incisions. They washed the foot and looked at the surgical incisions. The foot seems to be healing well. There is not alot of swelling and the incisions look intact. Cassie got to pick the color of the next cast. Dr. Burrows recasted her in with this bright purple!! We go again May 3, 2010.

Friday, April 9, 2010

Recovery and Visits from Friends
















Cassie is so glad to be home. Julia is so glad to have Cassie home. Julia and Laura could hardly wait to see Cassie. Laura brought Cassie Get Well Balloons which we tied to the wheelchair. Laura says " Don't float away Cassie!".

Aunt Helen was first to arrive. She came with her sharp sewing scissors and we cut us some old pants to fit over the cast. Thanks Aunt Helen.

Cassie's friend Shelby and her older sister Kelsey arrived with two cool magazines about Justin Beiber and Miley Cyrus. Shelby kept Cassie amused for almost two hours. Thanks Shelby!! You are a terrific friend.























Cassie with her Dad and Dog after a warm shower which felt so good! Cassie is doing well hoping around with a walker and some supervision. I think the walker may strengthen up the weak left hand. Yes I am always thinking of ways to do more therapy.

We are welcoming some more company this weekend to keep Cassie entertained!

Thursday, April 8, 2010

Day Two in the hospital

Cassie's physiotherapist and her student physiotherapist Kyra. Learning how to move without weight bearing on left foot in the physio gym at Mcmaster Children's hospital.

Day two in hospital. Cassie did great, woke every few hours for her pain meds, vital signs and a check of her foot. She easily fell back asleep in between after the exhaustion of the first day. Roommate number 2 was a 71/2 girl named Jamie who unfortunately fell at the playground and fractured her arm. The same orthopedic surgeon did surgery on Jamie's arm. Reminds me as a parent how quickly an accident can happen. Dr. Burrows visited Cassie twice. A nice surprise was Dr. Gorter visited Cassie as well. Thanks for the warm wishes Dr. Gorter. He says we will repeat the motion lab after the recovery. It will be fun to see the improvements in the foot position and walking abilities. Cassie did so well we were able to go home. Mom and her had already learned how to transfer before the physio even arrived. A huge amount of the day was spent by Chris looking to rent some pediatric equipment. Walker, wheelchair and some bathroom equipment. Cassie was not eligible for CCAC so we had to pay for the pieces. A tribute to how well she does but unfortunate as the pieces cost around $200. 00 for the month. Craig from Shoppers Home health hooked us up and rushed the delivery so we could be discharged home at 4:00pm. The first walker with a forearm support did not work for Cassie, the hospital had no crutches or walkers to try out while we were there. I think I will give feedback to the therapists that they should have some equipment available to try but 3C is not straight orthopedics and we had no equipment and there was too much clutter trying to get a commode to the washroom which was in the hall not in the child's room. Things went too well to let small things annoy us. Chris took the prescription for pain meds to Shoppers ahead of time and it was a good thing because they would not fill the script as it lacked some information. A few glitches, but they were rectified with perseverance. Craig from Shoppers picked up the one walker, switched it for another and we rented a commode as our bathroom is too small for a wheelchair and walker. It was amazing to get home so quick and Cassie is doing well.























A view of the nursing station from Cassie's bed. We ran into numerous other professionals that know Cassie Susan from the Infant Parent Program recognized me right away. She had not seen Cassie for eight years. A friend from work has a baby who has been admitted for six weeks and some friends from church who's beautiful daughter Hannah has a brain tumor. We have Hannah in our thoughts and prayers and her entire family. It is difficult to know why some children have to suffer and please pray for this beautiful child.