Saturday, February 13, 2016

Cassie is fifteen

Today Cassie told me she showed her blog to her teacher and EA's at her high school. She asked me why I do not blog about her anymore. I told her when she hit a certain age she asked me not too.  Cassie promptly told me  she said she would like it if I kept blogging about her so here is your first update Cassie in quite a few years!!  Cassie is a typical teenager, she loves hanging out with her friends and cousins.  Listening to music with her BEATS and Pill.  Her favorite bands are 5 Seconds of Summer and  One direction.  She loves surfacing the internet for funny videos and VLOG families.    Cassie volunteers every Wednesday at our church with a program called  MACSOC.  Run by the Mcmaster Nursing students and our church helping the homeless or disadvantaged  Cassie attends St Johns Evangelical Lutheran Youth group.  She attends YAC, (Youth Advisory Council).  Recently she was an Ambassador for the New Ron Joyce Children Center, She was on the CANCHILD youth panel for family Engagement day.  Cassie still sees a developmental pediatrician, orthopedic surgeon, Neurosurgeon for her shunt, Cassie attends the Teen transition clinic with Dr. Gorter,  She sees Julia her OT and her entire rehab focus is on learning life skills that promote independence.

I am thrilled with the support she has been provided by Children Developmental Rehabilitation Program.  Cassie is looking forward to her time at the New Ron Joyce Centre for her last few years before transition to adult health care.  I have grown as well as a mother of a girl with a disability.  I am the Parent Ad visor for CP Net.  I will link you to the CP Net website.  I follow websites for Mcmaster children s hospital, CANCHILD, NeuroDev Net, Easter Seals Ontario, CP net family Network, CP Alliance, Ontario Brain Institute, OFCP and Spina Bifidia and Hydrocephalus Association.

I am so Happy Cassie says I can blog again.  I will fill the blog with Teen transition for a young girl with CP.
Happy Family Day!!


http://cpnet.canchild.ca/


Cassie with her Cousin Emily!!